I don’t share much about my personal life on my blog (I save that stuff for twitter, y’all!), but today I want to talk about the CdLS Foundation.
You’ve never heard of the CdLS Foundation? I’m not surprised. It’s a small organization that does great things. Cornelia deLange Syndrome is a rare genetic disorder present at birth, though not always diagnosed at birth. The Foundation is an outreach organization that helps families of kids with CdLS. The Foundation is able to offer help and support to every family that requests it, thanks to donations and fundraising efforts.
Last year, I ran the New York City Marathon for Team CdLS, and it changed me. I raised $2500 for the Foundation, ran hundreds of miles in training, and knocked 8 minutes off my previous best marathon time–a 5 year old pre-kids time no less–when I crossed the finish line after seeing 26.2 miles of NYC on foot.
With the Chicago Marathon registration opening in just a few days, I am hoping to join the team in Chicago this year, and I would urge anyone out there who has the desire and ability to run a marathon to think about joining us to help these kids lead better lives. There are bigger, more popular charities, but this one is dear to my heart.
I hope you’ll consider joining us in Chicago this fall!